The Collaborative Program has reached major milestones over the past month, including the go-live of the Child Digital Health Record (CDHR) 0-4 years at Dubbo in western NSW and the first newborn to be digitally assessed at Blacktown Hospital. The technical go-live of the Digital Pregnancy Health Record (DPHR) was completed in Brisbane, allowing us to test the data flowing between systems.
Progress has also been made on the clinical data required for the CDHR’s 5 to14 year old’s program, and we have set up an expert committee to help us with that project. It’s exciting to see the potential of a longitudinal health record for pregnant women and children, and we are making great progress to reach this goal.
COVID-19 continues to place demands on our public health systems and we want to thank all those clinicians who are helping us to test systems, enrolling patients in the trials, and working with us in the trial areas while still managing significant clinical demands. Also, sincere thanks to the patients who have agreed to help us out with testing in this early stage of the trials.
Collaborative Programs at a Glance:
Maternal Program – Digital Pregnancy Health Record (DPHR)
The Digital Pregnancy Health Record (DPHR) team in Children’s Health Queensland, Queensland Health has been working hard to deliver the DPHR proof of concept. The exciting news is that the trial version is working, data from the pregnant woman’s antenatal check-up with the GP is flowing to the Child Data Hub and appears on the expectant mother’s app on her phone. Test data (rather than ‘live’ data) has been used at this stage, but several different clinical scenarios have been tested and are working as expected.
Children’s Program – Child Digital Health Record (CDHR) 0 – 4 years
This initiative is being run out of NSW and this part of the program focuses on the health check-ups for children from birth to 4 years old. This is a critical time in a child’s life and the Child Digital Health Record is designed to replace elements of the hard-copy Baby Book that parents receive soon after registration of a newborn, with parents being able to track and see their child’s health and development information using an app on their phone. The standard Health Check Assessment completed by the GP or community and family nurse is recorded electronically, and the information stored in the Child Data Hub, which in turn is available on the App.
Children’s Program – Child Digital Health Record (CDHR) 5 – 14 years
The next step in the program is the design of the Child Digital Health Record (CDHR) 5 to 14 years initiative. Central to this work being led by Northern Territory and Western Australia, is the discovery and scoping work that needs to be done to understand what data is important to collect in these years. Part of this work involves extensive consumer and clinical surveys and the outcome of this work will guide the next steps, i.e. what data is required and what should we be collecting for this age group and how best to deliver a solution that meets everyone’s needs.
Privacy and Security of Data – How We Protect the Privacy of your Data
We understand how important it is to ensure the privacy and security of children’s and mothers’ health information.
Despite the CDHR trial involving only a small group of users (both individuals and clinicians), we have put several measures in place that protect the privacy of the information in the system.
The trial is being run and managed by eHealth NSW, the digital health agency of NSW Health. All data captured during the trial will be stored and managed under the same strict security and privacy requirements that NSW Health applies to all its systems.
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