September 2024 College Communique – Now Available

WHAT’S INSIDE?

• ACCYPN – Join the Conversation
• Chairperson’s Letter
• Journal of Children and Young People’s Health
• ACCYPN Webinar October 2024 – Help improve HPV vaccination rates for young people with disability
• WA Chapter Report
• 9th International Neonatology Association Conference 2024
• Rarest -Rare Disease Awareness, Education, Support and Training
• New Child Safe Standards Resources
• ACCYPN Entertainment Book Fundraiser
• Containers for Change
• A Time to Remember – Book Sales

EMAIL LISTING

To ensure that all emailed ACCYPN correspondence reaches you, please add info@accypn.org.au to your address book and/or safe senders list. 

DO YOU HAVE ANYTHING OUR MEMBERS WOULD BE INTERESTED IN HEARING ABOUT?

• An interesting article
• Something happening in your workplace
• An event you would like to share

We warmly welcome member newsletter contributions.  Please email your items to info@accypn.org.au

CHAIRPERSON’S LETTER

Dear Readers

Welcome to our ACCYPN newsletter. I am reflecting this month on the role of Paediatric Nursing. This speciality area is often under recognised in the health care system. We know that paediatric care is a specific medical specialist area, yet the nurses providing 24/7 care for children are not required to have speciality training. 

Some hospitals provide minimal paediatric training, but the staff are not mandated to attend. Children are a vulnerable population due to their specific developmental needs. Unfortunately, children have been known to die in acute care and community care settings from preventable circumstances. This could this be mitigated somewhat by the compulsory paediatric postgraduate training or compulsory paediatric topics in the BN program. Paediatric trained nurses and nurse practitioners play a critical role in providing specialised care for children.

Paediatric nurses provide:

• Specialised knowledge
• Child-centred communication skills
• Developmentally appropriate care provision specialist skills
• Advocacy and support for families
• Timely Early interventions and prevention care
• Interdisciplinary care

In summary, paediatric nurses and nurse practitioners provide essential, specalised care that supports not only the physical health of children but also their developmental, emotional, and psychological needs. Their role is indispensable in both acute care settings and community health. I am sure these are only a few of our skills.

We at ACCYPN work tirelessly to promote our unique role.

All the best

Yvonne Parry

ACCYPN – Chairperson

Volume 5 Number 1 – 

Journal of Children and Young People’s Health (JCYPH) is now available.

ACCYPN Members access is via the Members Portal (contact ACCYPN Secretariat if you need your Members Portal Email sent to you info@accypn.org.au)

Official Journal of – 
Australian College of Children & Young People’s Nurses
Maternal, Child and Family Health Nurses Australia Ltd (MCaFHNA)

What’s inside

• Welcome: Letter from the Chairs
• Editorial: Reflections on self-compassion: building a more compassionate self
• Research: What clinical, professional or educational issues do expert non-government school nurses in Western Australia perceive as a priority for research investigation?
• Discussion paper: Fostering the retention of a skilled paediatric clinical workforce through undergraduate and postgraduate nurse education
• Case study: A reflective case study examining the Family and Community Liaison Coordinator (FCLC) role in early childhood development

ACCYPN WEBINAR

OCTOBER 2024

Registration will be available in the coming days.  Members keep an eye on your email for the registration link.  Non Members will be able to register here in the coming days.

Help improve HPV vaccination rates for young people with disability

Having the HPV vaccine is an important way to protect against HPV-related diseases such as cervical cancer, other HPV-related cancers and genital warts.

Although vaccinations are important, they can be stressful, and there are sometimes unique barriers for people with disability. In Victoria, HPV vaccination coverage for children with disability is lower than the rest of their peers, putting them at greater risk of HPV-related cancers and diseases.

With funding provided by the Victorian Department of Health, Cancer Council Victoria in consultation with Murdoch Children’s Research Institute and Scope Australia, has developed new resources to improve the vaccination experience for young people with disability and their parents/carers, including a fact sheet, animation and social story.

Fact sheet
This fact sheet for parents and carers of children with disability provides a brief overview of HPV, the HPV vaccine and how to support their child through the experience.

View and download the Supporting your child with disability with vaccination fact sheet.   

For more information and to access these resources, visit Cancer Council’s HPV vaccine website: hpvvaccine.org.au/disability 

WA CHAPTER REPORT

Clinical Supper September
Journey Mapping as a tool for communicating carer’s experience of navigating multiple, complex systems

The WA Chapter hosted the final event for 2024 on 24 September at Perth Children’s Hospital. 

Renee Darbishir, Systemic Advocacy Lead, Kiind and Matt Berry, Senior Project Lead at The Innovation Unit presented Journey Mapping as a tool for communicating carer’s experience of navigating multiple, complex systems. Renee and Matt shared the experience of creating the journey maps with families and the compelling stories of the complexity of navigating systems for our families. The experience of our families is so often very challenging, convoluted and stressful. As nurses we play a pivotal role in supporting families, so often a bright spot in their journey was a nurse who really listened, providing much needed support and assistance.

Maureen Hinton joined us at the Clinical Supper to award the Dorothy Clarke Scholarship. Maureen a Life member of the ACCYPN was on the Founding Committee of the WA Paediatric Nurses Association, and an active member of the subsequent Association and Confederation prior to us becoming the ACCYPN. Maureen has been a fantastic support and active member of the college. We extend our thanks to Lactalis for their support and sponsorship.

The 2024 recipients Dorothy Clarke Scholarship are Chelsea Kelly and Sarah Della-Bona. Chelsea is undertaking her PhD studies Creating a framework to support nurses detection of clinical deterioration in children with dark coloured skin, the scholarship funding will support expenses for her field trip to Broome to conduct focus groups with clinicians and parents / carers. Sarah received funding to attend a AIM Short Courses “From principles to practice”.

The ACCYPN would like to extend a huge thanks to the WA Chapter working group, Pam O’Nions, Meagan Lim, Charity Chola, Jade Ferullo, Tanya Nybo. We welcome two new members to the group Michelle Hyde and Hayley Benbow. Plans for 2025 will commence shortly, please look out for a member survey seeking input into events and topics.

ACCYPN 16th ANNUAL GENERAL MEETING

The ACCYPN AGM is being held on Thursday 31 October 2024, 7:00pm (AEST) via Zoom Video Conference.

INAC 2024 – THE 9th INTERNATIONAL
NEONATOLOGY ASSOCATION CONFERENCE

05 – 08 December 2024 – Berlin, Germany

INAC is geared to address practical problems in Neonatology with a global lens, engaging delegates from all over the world who participate in scientific deliberations about important topics in Neonatology. This unique forum facilitates global networking amongst neonatologists, perinatologists, paediatricians, nurses, nurse practitioners and respiratory therapists who participate in preconference workshops and scientific sessions.

To encourage participation from leading institutions like Australian College of Children and Young People’s Nurses we are pleased to offer exclusive group discounts for your members. This is a unique opportunity for your members to engage with top professionals in the field, exchange knowledge, and stay abreast of the latest advancements in otology.

• Customized Packages: We understand that each institution has different needs, and we are ready to tailor our group packages to best suit your requirements
• Exclusive Discounts: Australian College of Children and Young People’s Nurses will receive a special code for your members to use during the registration process to avail of the group discount
• Mutual Promotion: We are also open to collaborating on promotional activities. If Australian College of Children and Young People’s Nurses is interested in a mutual collaboration of INAC 2024 to share the event on your platforms, we are happy to reciprocate by showcasing Australian College of Children and Young People’s Nurses on our official conference website.

If you are interested in taking advantage of this opportunity, please email Jeanne-Marie Van Der Berg and she will provide you with the special code and further details. 

Dear friends of the Rare Disease Awareness, Education, Support and Training (RArEST) Project 
The RArEST Project officially concluded on 30 June. While there is still more to do to work towards the best health and wellbeing outcomes for the estimated two million Australians living with a rare disease, we are proud of what’s been achieved over the last three years with your help. 
Funded by the Australian Government, the RArEST Project developed resources for people living with a rare disease, health professionals and advocates. You’ll find links to these resources below. The RArEST Project supported implementation of the Australian Government’s National Strategic Action Plan for Rare Diseases, the first nationally coordinated effort to address rare diseases in Australia.

The RArEST Project team asks that you share our resources with your networks far and wide. You can find a full list of deliverables in this email and on the dedicated RArEST Project page on RVA’s website.

RArEST PROJECT RESOURCES
FOR INDIVIDUALS

• Applying Mental Health First Aid in a Rare Disease Context
• Mental Health First Aid training for rare disease group/organisation personnel
• Mental health and wellbeing support for Australians living with a rare disease
• Living with a rare disease digital mental health resources fact sheets, including Easy English and Plain Language versions
• National Recommendations for Rare Disease Health Care Summary
• The Lyfe Languages Universal Medical Translator, available via the Lyfe Languages web application, which features a purpose-built rare disease module

FOR HEALTH PROFESSIONALS

• National Recommendations for Rare Disease Health Care (the Recommendations), which outline how Australian health professionals can provide high quality care to people living with a rare disease, their families and other carers. The Recommendations have been endorsed by RVA and 10 national colleges and bodies to date
• ‘Rare Disease 101 – Australia’ e-learning modules for health professionals. The module is an RACGP CPD approved activity for 2.5 Educational Activities hours and 2 Reviewing Performance hours
• Supporting the mental health and wellbeing of people living with a rare disease
• The Lyfe Languages Universal Medical Translator, available via the Lyfe Languages web application, which features a purpose-built rare disease module
• Rare Disease Project ECHO® Community of Learning Practice

CO-DESIGN FOR SYSTEMATIC IMPROVEMENT

• Taking Action Together Toolkit: Improving Health and Wellbeing Outcomes for Australians Living with a Rare Disease
• Three interactive health system simulation workshops
• The Australian Rare Disease Organisation Community of Practice (ARDO-CoP) – download a summary PDF of the sessions facilitated during the RArEST Project
• A suite of one page fact sheets
  – What does it mean to live with a rare disease?
  – Co-design and the person-centred approach
  – The importance of collaboration
  – A shared purpose – hearing from the rare disease community

OVERALL RArEST PROJECT LEARNINGS

To provide stakeholders with an easy to follow snapshot of RArEST Project learnings and deliverables, we have developed a suite of one pagers. The RArEST Project comprised three streams:

Stream 1: Support for individuals, including mental health and wellbeing resources

Stream 2: Health professional education, support and training

Stream 3: Adopting a co-design approach to awareness and education for systemic improvement in rare disease care and support

• Overall RArEST Project learnings (PDF)
• Stream 1 learnings and deliverables (PDF)
• Stream 2 learnings and deliverables (PDF)
• Stream 3 learnings and deliverables (PDF)

KEY AUSTRALIAN RARE DISEASE WEBSITES

Rare Awareness Rare Education (RARE) Portal – contains current, reliable and straightforward information and resources for all rare disease stakeholders customised for the Australian context

RARE Helpline – provides service navigation support for Australians living with rare and complex diseases

Rare Voices Australia – the national peak body for Australians living with a rare disease

Rare Voices Australia’s Online Education Portal – contains several free and restricted rare disease-specific education resources

NEW CHILD SAFE STANDARDS RESOURCES: UNDERSTANDING CULTURAL SAFETY FOR ABORIGINAL CHILDREN AND YOUNG PEOPLE

We’ve published new resources to help you with Child Safe Standard 1, including:

• Understanding cultural safety for Aboriginal children and young people: A resource for implementing Child Safe Standard 1
• Tips for creating a culturally safe environment
• Frequently asked questions with Meena Singh, Commissioner for Aboriginal Children and Young People
• Days of importance for Aboriginal communities.

These resources will help you build your understanding of what cultural safety means and why it is important for the safety of Aboriginal children and young people. 

The guide also includes practical tools, tips and resources to help you meet your obligations under Child Safe Standard 1. 

Learn more on our website.

UNDERSTANDING CULTURAL SAFETY
FROM A YOUNG PERSON’S PERSPECTIVE

Youth Voices is a platform for young people to share their experiences and perspectives about the big issues that affect them.

Read the latest article by Youth Council member Elias, who describes what it’s like to face racism in organisations, and why cultural safety is so important.

Read the article.

ACCYPN ENTERTAINMENT BOOK FUNDRAISER

For a limited time, grab any Single City Entertainment Membership and get a FREE upgrade to a Multi City Membership! Plus, receive a $20 Everyday WISH Bonus eGift Card! ????✨ Run, don’t walk … this is only available until 11.59am 30 September 2024.

Donating is really simple! Drive through the donation centre, someone comes to the car, give them our account number, they grab the bottles out of the boot, no waiting. The money is then transferred to our account.

WA – Containers for Change

WA  –  C11000807

QLD – Containers for Change

Qld – C11070220

ACCYPN are selling ‘A Time to Remember’ via our website on behalf of the Author Janet H Henry. 

‘A Time to Remember’ is the first comprehensive descriptive account of the history of the Infant Welfare/Child Health Service in Queensland, Australia.  It traces the development of the service from 1918 to 1991.  It tells the story of a service born out of a world-wide concern about high infant and maternal mortality.  The journey began with a conference in France in 1905, following which several new initiatives emerged around the world.  It was during this time that the work of Sir Truby King (New Zealand) became Known.  Australia was interested in his teachings and “baby clinics” began opening. It was not until March 1918 that the first clinic opened in Brisbane in Brunswick Street, Fortitude Valley.

The author has carefully researched and presented this compelling story of service that grew from humble beginnings to become one of the largest preventive health networks for families in the state.  It elevates the discipline of child health nursing and the courage, survival in the face of adversity, sacrifice, and above all of determination and success in taking services to mothers, babies and families in some of the most remote areas of the state. The book includes a series of engaging and touching stories of child health nurses, past and present, and photographs that provide a personal touch to the valuable historical content.

Cost – $40.00 (includes postage and handling within Australia)

Click here to purchase

If you would like to purchase more than one book or reside outside of Australia, please email the ACCYPN Secretariat – info@accypn.org.au